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research:studies:faq [2014/12/09 16:32]
jduke
research:studies:faq [2017/02/06 13:55]
rkboyce
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 **Will any patient-level data shared?** **Will any patient-level data shared?**
  
-No.  OHDSI studies produce only aggregate ​level statistics and analysis ​results.+No.  OHDSI studies produce only population ​level aggregate summary ​results.
  
 **Are IRB protocols provided?** **Are IRB protocols provided?**
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 **How are collaborative research studies proposed?** **How are collaborative research studies proposed?**
  
-Proposals may be submitted by any named collaborator in the OHDSI consortium. ​ The submission process involves posting a preliminary overview and protocol to the [[research:​protocols_in_development|Protocols in Development]] page.   A notification of this posting should also be made on the [[http://​forums.ohdsi.org/​c/​researchers|OHDSI ​Reseachers ​Forum]]. ​ The study proposal is then reviewed by the community. ​ This review period, typically 2-3 weeks, will determine level of interest as well as generate suggestions for modification to the study design ​from phenotypes to analysis method.+Proposals may be submitted by any named collaborator in the OHDSI consortium. ​ The submission process involves posting a preliminary overview and protocol to the [[research:​protocols_in_development|Protocols in Development]] page.   A notification of this posting should also be made on the [[http://​forums.ohdsi.org/​c/​researchers|OHDSI ​Researchers ​Forum]]. ​ The study proposal is then reviewed by the community. ​ This review period, typically 2-3 weeks, will determine level of interest as well as generate suggestions for modification to the study design.
  
 **What are the required elements?** **What are the required elements?**
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 **How are results returned to the OHDSI community?​** **How are results returned to the OHDSI community?​**
 +
 +Each study needs a study coordinator who will serve as the contact point. ​ Results-- which should be both de-identified and aggregate-- should be returned to this individual. ​ They are then responsible for organizing and analyzing data with the study leadership team for publication and sharing back to the OHDSI community.
research/studies/faq.txt ยท Last modified: 2017/02/06 14:00 by rkboyce