Observational Health Data Sciences and Informatics

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The group agreed to explore the onco domains in the following order:

1. Diagnosis
2. Treatment
3. Outcomes survival
4. Molecular biomarkers
5. Pathology reports
6. Imaging
7. Performance status

Existing standards

· Tumor Registry, CDISC and SEER are the existing standards and efforts in harmonizing the data collection.

Exploratory data set

· Christian would try putting together a working data set

ICD-O-3 overview

Michael Gurley's ICD-O-3 Presentation and proposal for CDM cancer diagnosis modeling

• ICD-O-3 provides most granular representation of cancer diagnosis including anatomic side and morphological/behavior.
• Diagnosis can be represented in condition_occurence

· Iker suggested that the ICD-O-3 could be mapped to SNOMED and agreed to provide some links to the group.