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documentation:vocabulary:naaccr

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NAACCR

NAACCR (North American Association of Central Cancer Registries) is a data standard used to code data in the US Cancer Registries. NAACCR is arguably the best existing data dictionary that covers majority of cancer types and includes critical diagnostic features and high level treatment classification used in cancer epidemiology.

Source structure

NAACCR data is not provided in a form of standard ontology. They exist as a list of different cancer-related variables provided with a list of valid values and their codes. Variables themselves are split into schemas representing diagnostically related groups of neoplasms, such as lymphomas or esophageal neoplasms.

Source tables used for ingestion of NAACCR into OMOP CDM are derived using SEER API.

Code format

All NAACCR codes are ontological, meaning they are built by concatenating all preceding ontological levels to capture meaning.

Example of code for value representing extent of tumor of colon:

colon@2810@050 (Adeno)carcinoma, noninvasive, in a polyp or adenoma

Value code contains parent schema name (colon), variable code (2810) and proper value code (050).

Concept classes

Schema level Description
NAACCR Schema Top level of hierarchy, grouper concepts
NAACCR Proc Schema Schemas exclusively containing medical and surgical procedures related to cancers
Variable level
NAACCR Variable Variables belonging to schemas
Value level
NAACCR Value Concepts representing permissible values for most variables
NAACCR Procedure Medical procedures belonging to specific schemas
Permisssible Range Concepts representing certain numeric ranges as answers

Domains by class

NAACCR concepts belong to different domains depending on their clinical meaning.

Schema level Possible DOMAIN_ID Description
NAACCR Schema Observation Hierarchical level, so concepts are non-specific groupers
NAACCR Proc Schema
Variable level
NAACCR Variable Measurement, Observation, Metadata, Episode Various domains depending on clinical meaning
Value level
NAACCR Value Meas Value, Procedure, Observation, Drug Concepts representing permissible values for most variables. Meas value is the most common, other domains are chosen depending on parent variable domain
NAACCR Procedure Procedure, Observation Procedure domain is default. Observation domain is for concepts indicating special procedure context (e.g. procedure not performed)
Permisssible Range Meas Value Concepts representing certain numeric ranges as answers
documentation/vocabulary/naaccr.1583831697.txt.gz · Last modified: 2020/03/10 09:14 by ekorchmar